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Letter on Record Access by Sir Graeme Catto (GMC-UK)

Sir Graeme Catto, President General Medical Council, UK

Sir Graeme Catto

Records Access

The GMC’s statement of the values of the profession Duties of a Doctor and our core guidance Good Medical Practice emphasise the importance of doctors working in partnership with patients. To achieve this, doctors and patients need to communicate effectively with one another, and doctors must provide patients’ with information that they want or need to know in order to make decisions about their care. For example in Duties of a Doctor we say that doctors must:

Work in partnership with patients

  • Listen to patients and respond to their concerns and preferences
  • Give patients the information they want or need in a way they can understand
  • Respect patients’ right to reach decisions with you about their treatment and care
  • Support patients’ in caring for themselves to improve and maintain their health.

We welcome and support the use of new technology, including records access systems, which can make a significant contribution to the provision of information patients need in order to make decisions about their care.Of course, patient access to records, on request, has been a requirement under the Data Protection Acts since 1991. The current Act provides safeguards for patients themselves, and for the privacy of third parties. Clearly these legal obligations must be met, whatever means is used to give patients access to records.

Providing access to records outside the context of the Act does introduce some new questions, including the need to record information in a way patients can understand, how bad news, for example from test results, is communicated to patients, and how patients’ privacy can be maintained.

These are not new issues of principle, but practical matters that need to be addressed sensitively. They do not undermine the principles of openness and honesty with patients, or of the benefits of partnerships with patients, which records access systems will foster, and that the GMC supports.

Letter to Dr. Brian Fisher, 31 October 2007, publication authorised by Sir Graeme Catto.

Posted 3 Nov 2007
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Why doctors should not fear but can profit from patients access.

Author: dr. Brian Fisher, GP, London

Brian Fisher

Patients’ record access is here to stay. It is available now in many countries and is gradually extending across the world. There are different systems, through smart cards, kiosks in GP waiting rooms and online.

The reason for this is clear – it is safe and very helpful for patients and for clinicians. The benefits often overlap – what is good for patients is also helpful for professionals. I write this paper from the basis of experience – I have been showing my patients their records for over 20 years now. In the last year, we have been doing this online. We have carried out extensive research in the field. Our learning can help you proceed more safely and more swiftly.
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Posted 19 Aug 2007
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Welcome!

Welcome to the UK Patient Record Access blog!The goal of this blog is to offer patients as well as clinicians the possibility to give their view and experiences on Record Access on an independent platform.The goal of this blog is to offer patients as well as clinicians the possibility to give their view and experiences on Record Access on an independent platform.This platform has arisen from the general ICMCC portal on Patient Record Access and has become the inspiration for other national discussion platforms.

The goal of this blog is to offer patients as well as clinicians the possibility to give their view and experiences on Record Access on an independent platform.This platform has arisen from the general ICMCC portal on and has become the inspiration for other national discussion platforms.We hope you will enjoy taking part in our discussions.

Lodewijk Bos
President ICMCC

Posted 25 Aug 2006
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Discussion


Can patients improve their own health? Results from a study of smartphone use in diabetes and hypertension

“In the last several years that I’ve been studying the topic, I’ve been continually amazed at patients’ seemingly unlimited capacity to perform self-care. Faced with a life-threatening chronic illness, I see patients looking to take control of their condition, rather than recoil in despair.
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Posted 24 Feb 2012
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The real reason why physician groups want to keep using ICD-9 codes

“I have to wonder about the state healthcare information technology (HIT) in this country. Major medical associations can’t seem to let go of ancient technology.
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Posted 5 Feb 2012
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Questions raised about patient access to GP record:

What happens if a patient is misrepresented by those writing the notes whether its a GP or another clinician such as a psychiatrist/psychologist?

Posted 16 Dec 2007
6 Comments »


When the heat is over

Record Access Discussion
in The Guardian, 1 November 2006

‘A national database is not essential’

Warning over privacy of 50m patient files

From cradle to grave, your files available to a cast of thousandsWe invite you to continue here to discuss issues concerning record access.

Posted 2 Nov 2006
6 Comments »


EHR for psychiatric patients

Referring to a recent article on specific aspects of EHR for psychiatric patients, we would like to start a discussion on how the EHR can help the psychiatric community as well as how to deal with these specific issues. We would like to invite clinicians as well as patients to participate.

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Posted 30 Oct 2006
3 Comments »


Terminology

There is quite some confusion about terminology.

In my view, EHR (Electronic Health Record) should be the envelopping term, including EMR, ECR and PHR.

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Posted 19 Sep 2006
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All discussion items

UK EHR News


Lessons From the UK NPfIT Debacle Still Being Learned

“The decision last year to finally cancel the UK’s National Program for IT (NPfIT) effort to implement a nation-wide integrated electronic health record (EHR) system because of its spiraling cost and complexity is looking better all the time. According to a recent story in Computer Weekly, roughly 60 percent of London National Health Service (NHS) hospital trusts are operating without IT disaster recovery systems in place.
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Posted 15 May 2012
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Record access by 2015 a ‘tall order’

“The Government pledge to give all patients access to their electronic health records by October 2015 is a “tall order” for busy GPs to fulfill, says Dame Fiona Caldicott.
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Posted 14 May 2012
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EHRs: the patient as resource

“Buried in this story from the UK’s eHealth Insider on the fact that the NHS Information Centre is to collect data on which GP practices are offering patients access to their medical records online
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Posted 2 May 2012
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NHS Oxfordshire starts rolling out summary care records

“NHS Oxfordshire is contacting patients in the county to prepare for the rollout of the Summary Care Record. Every patient registered at a GP practice in Oxfordshire aged 16 years and over is being sent a letter this month to explain what the summary care records are, their benefits, and that patients need to make a choice about whether they have the records or not.
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Posted 11 Apr 2012
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NHS chief’s plea on e-health records

“Thousands of South Tynesiders are being offered new electronic health records to ensure they get the best treatment in emergencies.
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Posted 3 Apr 2012
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Lessons learned from England’s national electronic health record implementation: implications for the international community

Background:
National electronic health record (EHR) programs are increasingly being pursued across the world with the aim of improving the safety, quality and efficiency of healthcare. Despite significant international investments, and particularly in the light of reported “failures”, there is surprisingly little evidence on the specific and potentially transferable factors associated with the planning and execution of large-scale EHR implementations. England embarked on a National Program in 2002, characterized by “top-down”, central procurement of a few, standardized EHR systems.
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Posted 22 Mar 2012
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